Surviving FPIES Mentally and Building Resilience

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When I get down on how sucky FPIES is, I remind myself that this could be worse. The silver lining:


FPIES is not an incurable disease that is fatal
FPIES can be outgrown
Even if child ends up in ER, child gets to go home from ER.

FPIES is cruel because you have to persevere with the food challenges even if they scare you. Each food challenge brings about a roller coaster of emotion.


So mamas, focus on the positive! Remember that you are being brave and strong with each food challenge. You get creative in trying new foods. You get resourceful making your child's meal with limited options. Even if all seems overwhelming, you will find a way to pull through


If you need some extra support, I'm here for you


Love, Mun